Patient Engagement Manager (m/f/d)
European Reference Network for Rare Kidney Diseases – Maternity Leave Replacement (m/f/d)
wanted starting on 15.10.2025 at the Heidelberg University Hospital.
The Department of Pediatric Nephrology at Heidelberg University Hospital is seeking a dedicated and proactive Patient Engagement Manager (50–100%) to support the European Reference Network for Rare Kidney Diseases (ERKNet) during a maternity leave replacement.
This is a fixed-term position for one year, starting October 15, 2025, with the potential for continuation. The position is compensated according to the TV-UK tariff.
About ERKNet
ERKNet is one of 24 EU-funded European Reference Networks (ERNs) dedicated to improving care for people living with rare diseases. It brings together over 70 expert centers across Europe, providing care to more than 70,000 adults and children affected by rare kidney conditions.
Beyond clinical care, ERKNet also drives cross-border collaboration in research and education, offering clinical training and developing joint research efforts to improve outcomes for patients. Patients are at the heart of ERKNet’s mission: they are actively involved in all aspects of the network, from strategic decision-making to the co-design of educational materials and research priorities.
European Rare Kidney Disease Reference Network
- Job-ID: V000014583
- Field of application: Zentrum für Kinder- und Jugendmedizin
- Location: Heidelberg
- Job Category: Management / Administration
- Working hours: full-/ part-time (19,25 - 38,5 hours per week)
- Published: 05.08.2025
- Limitation: Temporary (12 months)
- Contract: TV-UK
Your tasks
- Coordinate the development and dissemination of patient-friendly informational material
- Maintain and enhance ERKNet’s patient-facing website, ensuring up-to-date, accessible and interactive content that promotes two-way communication with clinicians and researchers
- Support and promote patient-initiated research projects within the network
- Plan, coordinate and facilitate live and virtual meetings
- Foster meaningful and structured engagement of patients in ERKNet’s research, governance and clinical activities
Your profile
- Bachelor’s or Master’s degree in a relevant field, Healthcare Research, Biology, Communication Science or equivalent and experience working with international patient organizations is an asset
- Experience in project management, ideally within research or healthcare settings, is preferred
- Excellent written and verbal English communication skills
- Proficient in Microsoft Office Suite, including Excel, Word, and PowerPoint
- Ability to work independently and collaboratively in a diverse team, bringing excellent organizational and multitasking abilities
We offer
- Possibility of mobile working
- Flexible working hours within the framework of flextime
- Possibility to publish scientifically is offered and supported
- Regular team meetings
- (Partial) project management / project responsibility possible if suitable
- Collectively agreed remuneration, attractive company pension scheme (VBL)
- 30 days vacation
- Sustainable travel: job ticket
- Family-friendly working environment: cooperative arrangements for childcare, subsidy for child vacation care, advice for employees with relatives in need of care
- Wide range of health, prevention and sports offers
Interested?
Please submit your full CV, as well as a letter of motivation and your most recent official transcript.
Applications will be accepted until 01.09.2025 online.
Zentrum für Kinder- und JugendmedizinAnna Dengler
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